You ever have one of those days that just truly suck? Days that suck your energy, patience, and desire to accomplish anything right out of you? Well, today is one of the days for me.
My fibro limits me in various ways. When I overextend, like I did this weekend wtih laying tile in one of my mom's bedrooms and the helping my son stay up prepping for a sleep deprivation EEG and then taking him to said EEG. When I overextend, my body reminds me of it for several days. Aches, dizziness, cramps and muscle spasms, heavy fatigue, and loss of appetite all are ways my body (because of the fibro) remind me that I over did it. The flare hits worse the day after but normally lasts for several days. The severity diminishes somewhat as my body manages recover from the overwork that I out it through.
That's something that a lot of folks don't understand. I can do a lot of things that are considered normal. They don't see the torment that I go through on the following days. That's why I have to be careful and pick and choose which activities I will do.
Now, while this is a bit of a rant, I want to make it clear that I do not ever intend for this disease to keep me from doing what I want to do. I will do what I need to do and accept the consequences. At that point, it's my choice to be a stubborn, pigheaded Polack. Everyone else just needs to get out of my way. I don't need to be babied. I am learning the new limits that my body has decided to enforce. I am also aware of the consequences of going beyond those limits.
I will not let this disease beat me. I will not let it dictate to me how I should live my life. I acknowledge the limits and their consequences. I will not let them stop me from helping my family and doing things with my family. My family is too precious to me for me to allow it to take them and activities with them away from me.
I apologize that this is a little ranty and a lot incoherent. I'm dealing with the consequences of overextending this weekend. My brain and body are barely functioning today. I'm lucky to have made it into work today.
-- Sham
- Posted using BlogPress from my iPhone
Those weeks are never fun. My husband is super good now at anticipating these types of days with me. For example when I went with his brother to Utah for mediation and to take his kids to see their guardian ad litum. 3 hours each way of car time with 4 kids ages 2-16. No nap for the little one. High stress for all. I was the anchor. So I did what needed to be done with a smile and ease because that's what we do right? Hubby knew as did I and cleaned the house for me so I could flare in peace for a couple of days and focus just on that and being Mom. I love him for that. I sooooo get what you are saying!!
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